DARE Presents — Dialogues on Data: Who is Data-Driven Healthcare For?

31 January 2025
10:00 - 13:30

Location

Usher Building
Dialogues on data banner.

DARE, in partnership with the Centre for Biomedicine Self and Society, present a symposium bringing together clinicians, professionals, academics, policy makers and industry partners to discuss the role of data in the delivery of care.

In its strategy for data-driven care in the digital age, the Scottish government envisions improving the care and wellbeing of people in Scotland “by making best use of data in the design and delivery of services”. It aims to achieve this vision by delivering on three key ambitions: “(1) to empower the people of Scotland; (2) to empower those delivering health and social care services; (3) to ensure fit for purpose data is readily accessible”.[i]  

But what happens when these ambitions are in tension? When the extension of one comes at the detriment of another? How easy to access is too easy, and how do we empower both people and those in charge of delivering services? In short, how is “the best use of data” decided? Who decides, and what values and populations are prioritised in these decisions? Ultimately, who is data-led healthcare for?  

The UKRI-funded Data and the Healthcare ‘Revolution’ (DARE) project explores these questions across multiple technologies and fields of healthcare, and at diverse scales: the home, hospital, nation, and policy.  We ask who and what data-led healthcare cares for, and how data itself is cared for. 

In association with the Centre for Biomedicine, Self, and Society (CBSS), DARE invites you to a half-day symposium and networking lunch at Edinburgh BioQuarter to contribute your perspectives on the data|care nexus. The symposium will consist of multidisciplinary dialogues and a roundtable discussion during which academics, policymakers, industry professionals and healthcare practitioners will discuss what data-led healthcare might look like over the next 30 years, as well as the challenges and frictions on-the-ground in the here-and-now. Through these discussions, this symposium will foster communication and cross-fertilisation across the multiple perspectives shaping our data-driven health system in the digital age. 

 

Citation source: https://www.gov.scot/binaries/content/documents/govscot/publications/strategy-plan/2023/02/data-strategy-health-social-care-2/documents/greater-access-better-insight-improved-outcomes-strategy-data-driven-care-digital-age/greater-access-better-insight-improved-outcomes-strategy-data-driven-care-digital-age/govscot%3Adocument/greater-access-better-insight-improved-outcomes-strategy-data-driven-care-digital-age.pdf